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Falleció Peter Frates, quien hizo popular del “ice bucket challenge”

Peter Frates fue diagnosticado con la enfermedad de Charcot en 2012 y desde ese momento se convirtió en un símbolo para recordar al mundo la existencia de dicho mal.

El estadounidense Peter Frates, conocido por popularizar el “ice bucket challenge” en el 2014, falleció este lunes a los 34 años debido a complicaciones por la enfermedad de Charcot que padecía.
Si bien Frates no creó el popular desafío, que consistía en recibir un baldazo de agua helada en la cabeza, y fueron miles de personas quienes se animaron a realizarlo, incluyendo celebridades. Desde Oprah Winfrey a Jeff Bezos, pasando por LeBron James, Bill Gates, Steven Spielberg o Mark Zuckerberg. Todos ellos publicaron videos de su hazaña.
Como se recuerda, Frates era un exbeisbolista de alto nivel, casado y padre de una niña. Tras su diagnóstico en el 2012 se convirtió en el símbolo de la lucha contra la enfermedad de Charcot, aún llamada de Lou Gehrig o esclerosis lateral amiotrófica, la cual paraliza progresivamente los músculos.
Frates viajaba todo lo que podía para asistir a eventos públicos y recordar a todos la existencia de esta enfermedad bastante rara, que afecta a unas 16,000 personas en Estados Unidos y a una cifra similar en Europa, según la Asociación ALS.
Sobre el “ice bucket challenge”
La Asociación ALS, que apoya a quienes padecen la enfermedad de Charcot y su investigación médica, estima que las donaciones ligadas a esta campaña alcanzaron los US$115 millones.
Según la Asociación, estos fondos permitieron descubrir cinco nuevos genes ligados a la enfermedad y facilitaron el financiamiento de nuevos ensayos clínicos para tratamientos. Sin embargo, no existe al día de hoy una cura para la enfermedad, que provoca la muerte en tres a cinco años después del diagnóstico, en promedio.

Fuente: elcomercio.com<[/et_pb_accordion_item]

Protests in Colombia: Why is uribism in check?

Recent mobilizations in Colombia have hit the government of Iván Duque, the new heir of Álvaro Uribe. The ex-president’s party was recently punished in the local elections

 

Colombia has joined Latin America on fire. Tens of thousands of people protest these days on the streets against the government of right-wing Ivan Duque, who has an approval rating of less than 30%. They demand the non-application of reforms to the labor and pension system – which were not officially announced – and claim against a tax reform law.
The protests suggest a crisis of the Democratic Center (CD), the ruling party and which is led by former president Álvaro Uribe (2002-2010).
“Uribismo has already become outdated for what Colombia needs now. You have to defeat him without violence and peacefully at the polls, as he plays. You have to start looking for new horizons ”, asked, during the general strike last Wednesday, Sebastián Giraldo, a student at the Universidad Gran Colombia.
Duque, 43, won the second round of the 2018 presidential elections with 10.4 million votes. It was the largest electoral support in the history of Colombia. Uribism was imposed again at the polls. Uribe or the presidential candidates directly supported by the ex-president had won all the presidential elections of the 21st century, except those of 2014.
But much has changed since then. After less than a year and a half in office, Duke’s approval ratings, considered a moderate within his party, are on the ground. His mentor, Uribe, also does not exceed 30% acceptance, a figure far from the usual for what was the most popular politician in the country.
The ex-plaintiff is being investigated by the Supreme Court of Justice for an alleged case of buying witnesses. The case has affected his image, but the crisis of his party is not explained, in itself, by the process in court.

Fuente: elcomercio.com